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Last week was all about working hard to raise awareness of allergies! And boy did we do our best! ITV’s This Morning came for lunch, we wrote an article based on the facts released by Allergy UK on the shocking new statistics surrounding allergies, and then we also were interviewed on BBC 3 Counties Radio breakfast show at the weekend to describe what life is like with severe allergies and how we have learned to live with them fairly successfully. There were also other projects going on which we will give more details on soon!

This week, the realities of allergies have hit with a bang. It’s probably a combination of bringing up the whole journey of what we’ve been through, which is bloody tough at the best of times, and fighting the daily battle we go through!

Actually, scrap that, this week has broken my heart all over again in a number of ways!

The pollen level has been pretty high, which has meant that Callum has been really suffering. Not just with sneezing, coughing and runny nose, but also with his eczema.

My god, the eczema, it’s been awful!

Itchy, sore, hot, weeping….. you name it, the poor kid has had it over the past few days. And it’s had him up in the night in some severe discomfort.

Apart from his multitude of meds, there’s not much more I can do to help him, except ride out the storm.

It really hit home again this afternoon!

Chloe goes to swimming lessons, and Callum was there with me today.

He’s been complaining all afternoon about how itchy and sore his wrists have been.

Now, when you suffer with eczema, a stuffy, humid swimming pool is the last place you want to be. It aggravates the skin beyond belief and causes the eczema to feel worse than it is.

We were sat talking with a friend, when Callum decided to play hide and seek under the chairs. After a minute or two, I noticed he’d gone very quiet.

He was under the chair, itching his sore, eczema encrusted wrist against the carpet in a desperate plight to find some relief.

It of course made the situation much worse.

Cue blood, and lots of it.

I tried to stem the flow with tissue, but of course, with the damage done to the skin, there’s not a lot you can do!

Eventually the bleeding subsided, but then came the extreme itchy sensation as the skin tries to dry the blood.

It was at this point that Callum became very aware of the other people around him, particularly other small children like himself.

He desperately started to try and pull down his t-shirt sleeves, and then said:

‘Mummy I don’t want anyone to see, I don’t like it’

It was all I could do not to sob my heart out, and I’m not ashamed to admit that I did struggle a fair bit to get some control!

My poor precious boy.

He’s only 3 years old, he shouldn’t be having to worry about peer pressure, and the concern of how other people will react around him.

Sadly, because he’s witnessed so many people react badly around him, inquisitive and ill-informed people whilst out shopping or at baby groups mainly, he’s become acutely aware of how people react to someone who doesn’t always look ‘normal’.

I can only protect him for so long. Soon he will be going to school, and will have to face this on a daily basis, and I can’t begin to tell you how much this breaks my heart!

I just hope and pray that people will be kind and not judge, and maybe ask him what he suffers with, and provide him with the empathy and awareness that he and so many others deserve!

Comments   

0 # Guest 2015-04-30 19:58
Oh no, poor little darling! I felt really choked when I read. I hope he feels a little bit more comfortable now? Maybe when he starts school get him one of those wrist bands, or would the rubber cause more problems? Maybe one of your next projects will be to design a really cool kind of badge? In the meantime, give him a special big cuddle from me. Xxxxx

Sent from my iPad

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0 # The Intolerant Gourmand 2015-05-13 14:38
Big cuddles gratefully received, skin getting more comfortable, but still flaring at the moment. It's the pollen that's the culprit! x
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0 # Guest 2015-04-30 21:34
Hi. I popped onto #allergyhour to see what I'd missed, saw your post first, and hopped straight over here to read. Like others, this has brought tears to my eyes. Gabriel (my youngest) had such severe eczema from 2 weeks old that people used to recoil from his pram. I joke now that he used to look like a cross between a Klingon and an uncooked hamburger, but at the time it was heartbreaking. He never slept for more than an hour and a half because he was in such discomfort. I used to pin the arms of his babygro to the sides at night so he couldn't tear at his skin. I had to lie him on a towel to breastfeed him because of how badly his skin oozed. And every day my mood depended on how good or bad – i.e. how comfortable or miserable – he was. Luckily (and funnily enough I mean luckily) he had an anaphylactic reaction at 8 months while I was weaning him and within a couple of weeks I had his diagnosis of 9 severe food allergies. Within a few months of controlled diet his eczema had all but disappeared and he only rarely has tiny outbreaks in response to colds or suncream etc. And yet I'm still scared of it. I find the EpiPens and related fear in many ways easier to deal with than the constant misery of his eczema days. We are supposed to start some food challenges soon (we've done a few before and they cause eczema as well as airway/anaphylactic reactions) and I dread it - in case they start the eczema again. I am three months late making his appointment and it's still nowhere near the top of my To Do list! And in September he starts school, sparking similar fears of how others will tease him about his allergies – or worse, flick their yoghurt or egg (or wheat, nuts, sesame etc etc) at him. I don't know why I'm pouring all this out other than to say I know how it feels and I hope Callum grows out of it soon. Very best wishes, Nicky
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0 # The Intolerant Gourmand 2015-04-30 23:00
Thank you so much Nicky! I nodded my head in agreement/ understanding to almost everything you said! It's so hard sometimes isn't it! We can stay strong, build businesses to try to make the situation better, but sometimes, when you see your little one suffering and hurting, none of it matters!
I totally get you not wanting to do the challenges, I'm exactly the same!! We were asked to do that with strawberry last year, Callum had an immediate anaphylactic response on 1st true exposure! I refuse to do any more now! Why put him through all that when he suffers enough as it is!?
Hugs x
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0 # Guest 2015-05-01 12:24
I'm so sorry to hear all this - just hope it improves soon. My son has also been very sneezy and watery-eyed over the last week or so (as have I). Send you love and hugs.
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0 # The Intolerant Gourmand 2015-05-01 17:50
It's so unfair that they have to suffer isn't it! Hope your little dude is doing ok too! Hugs and love back x
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0 # Guest 2015-05-01 13:37
Hi, I'm also a Bicester mum dealing with eczema and allergies. My son Kieron is allergic to dairy and soya, has bad eczema which reacts to pollen, wool, most cleaning products and loads of things we still haven't worked out yet. My youngest Logan also has eczema which reacts to soya. I was very worried about when Kieron started school as children often come up to him and ask him why his skin looks funny or has red blotches everywhere. He as been amazing though and just tells them that he has eczema which makes him very itchy and he has to put cream on. The kids have now stopped asking and treat it as totally normal for him. My only problem now is stopping other parents bringing in chocolates and cakes for their kids birthdays, I hate being mean and taking them away and have to supply the school with alternatives that they can give Kieron. Kids are so resilient I'm sure your son will be fine. I'm not sure you've ever talked about this is your blog as I'm quite new to discovering it, but have you ever found a suncream you can use? I've tried loads, so far the sudocrem one and a toddler milk are the only one my boys don't majorly react to. I hate summer with pollen and suncreams, sigh!
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0 # The Intolerant Gourmand 2015-05-01 17:53
Kieran sounds like one amazing dude!! Bless him! I really hope Callum has a similar experience next year! I totally understand the bringing safe food, I do that wherever we go because of the extent of Callum's allergies, it makes it quite difficult to cater for at the best of times!
Re sun creams, I have a post coming up in a few weeks! The 2 best ones I've found are uvistat and sunscreen, both of which Callum's consultant prescribed. But I do know that they can be bought off Amazon too!
Hugs x
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0 # Guest 2015-05-01 17:56
Hi. Have either of you tried the Green People children's organic sunscreen? It's the only one Gabe can use without flare-ups (mind you, I haven't tried Uvistat!) and it works well too - we go to Cape Town every year and it even copes with the African sun. Gosh sounds like a sales plug - maybe I should apply for a job there ;-)
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0 # The Intolerant Gourmand 2015-05-13 14:37
I'm going to investigate this, thanks Nicky!! I swear by Uvistat, so one for you to try too? ;) x
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0 # Guest 2015-05-01 20:33
That's so sad... When they start noticing there's something different about them, it can be heart-breaking. Beanie was asked at pre-school what the red bits were on her legs / arms / hands and she casually replied that it was eczema but some little ones though it was catching... Luckily the teacher explained what eczema was afterwards (I gave her the teacher's pack from NES - check it if you haven't yet) xxx
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0 # The Intolerant Gourmand 2015-05-13 14:36
It's awful isn't it, just feel so bad for them! Beanie is a clever cookie, well done her! And well done to the teacher for handling it so well too! x
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0 # Guest 2015-05-15 15:45
Poor little dude. Not great being aware of how (sometimes accidentally) ignorant people can be already . As far as school goes - one or two great friends can make ALL the difference, then you are in a little team which makes everything seem better. I think teachers are a lot more aware of kids needs these days and don't just expect them to get on with it, like years ago x
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0 # The Intolerant Gourmand 2015-05-15 17:51
True friends are hard to find, but priceless when achieved! I hope and pray he'll be fortunate enough to have a supportive network around him when he's at school! Reading between the lines, it sounds as if you're talking from experience! Hope you're school journey was kind to you, and you got to have the very support network you describe! x
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0 # Guest 2015-05-15 19:56
Yeah I had a great group of mates in high school but always had that best one that was always in my corner. I'm sure he'll be ok :0)
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0 # The Intolerant Gourmand 2015-05-18 20:35
Thank you! :)
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